Radio it is, then.
No messing about with the radiotherapist this time. In what turned out to be a very interesting meeting it has been decided that I will start radiotherapy in about two weeks. Yet again, as soon as I get my strength back, I'm going to go back to being knackered. I'd also better get my butt in gear and buy a new motor. I flogged mine a couple of days back and now I'll be needing one retty sharpish!
The consultant today spent the first 10 minutes of the meeting going through my previous refusal of treatment and basically tried to justify why I didn't get it. His heart wasn't in it though and it was blatantly obvious that if I had been referred to him then I would have gotten it. As he put it himself "Combined treatment for early Hodgkins is by far the best form of treatment.".
Yeah, thanks!
So the upshot of the meeting is that I'll have four weeks of rads to my chest alien and surrounding nodes. We're doing the extra nodes as seemingly Hodgkins works by "dripping" into adjoining nodes so if there is anything that has already dripped down from the mother lode it may currently be undetectable by modern technology so we'll just zap them in case. He was going to give me three but decided that seeing as my disease has been playing silly buggers they'll give me option 2 which is a higher dose over a slightly longer period.
I'm happy with all of this. I just want the specialists to chuck everything at me to make sure this doesn't come back. Stuff secondary complications. We'll deal with them in the future.
This also means that I now have to deal with three separate departments and keep each one informed of what the other one is doing. The NHS don't do interdepartmental communications! I'll also be "followed up" for up to 5 years by each department separately as well so even when I'm confirmed cancer free I'll be having hospital appointments coming out of my proverbial!
Chris, except a call soon. I'll be needing to grill you about your first hand experience!!
No messing about with the radiotherapist this time. In what turned out to be a very interesting meeting it has been decided that I will start radiotherapy in about two weeks. Yet again, as soon as I get my strength back, I'm going to go back to being knackered. I'd also better get my butt in gear and buy a new motor. I flogged mine a couple of days back and now I'll be needing one retty sharpish!
The consultant today spent the first 10 minutes of the meeting going through my previous refusal of treatment and basically tried to justify why I didn't get it. His heart wasn't in it though and it was blatantly obvious that if I had been referred to him then I would have gotten it. As he put it himself "Combined treatment for early Hodgkins is by far the best form of treatment.".
Yeah, thanks!
So the upshot of the meeting is that I'll have four weeks of rads to my chest alien and surrounding nodes. We're doing the extra nodes as seemingly Hodgkins works by "dripping" into adjoining nodes so if there is anything that has already dripped down from the mother lode it may currently be undetectable by modern technology so we'll just zap them in case. He was going to give me three but decided that seeing as my disease has been playing silly buggers they'll give me option 2 which is a higher dose over a slightly longer period.
I'm happy with all of this. I just want the specialists to chuck everything at me to make sure this doesn't come back. Stuff secondary complications. We'll deal with them in the future.
This also means that I now have to deal with three separate departments and keep each one informed of what the other one is doing. The NHS don't do interdepartmental communications! I'll also be "followed up" for up to 5 years by each department separately as well so even when I'm confirmed cancer free I'll be having hospital appointments coming out of my proverbial!
Chris, except a call soon. I'll be needing to grill you about your first hand experience!!
1 comment:
I'm glad you're getting rads since you've been hoping and fighting to get them. Hopefully they don't kick your butt that bad, and instead just kicks the hodge's butt :)
You should bulk up now on all those sweets, so when you lose weight with rads it'll be a-ok!
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