Thursday, January 17, 2008


I'm day +205 today. Only another 150 odd days to go before my odds of cure will statistically improve. From a few reports and trials I've read recently if you get through the first year post transplant unscathed then your odds of cure increase from 50/50 to 65/35. I believe they then increase by 5% per year after that. I was a bit shocked as I didn't know about the 50/50 thing to start with.
I had a routine appointment with my oncologist last Tuesday and all went well. Bloodwork was fine and dandy, no nodes popping out anywhere and my chest x-ray came back clean. My onc said "You still have a f*cking great big scar mass there but it's not doing anything" so I'm cool with all that.
I'm back to work now full time and fairly enjoying it. Days are tiring and it is a struggle to stay awake when I get home. I'm usually in my pit for 2100h. I've been asked to go to Alabama in February and I'm pretty excited about that as I may get the chance to meet up with a couple of friends who live not too far away from where I'll be.

Now the shitty but important stuff.
Too many people are relapsing or are in the system to see if they have relapsed. One person, Morgan, is currently going through her second transplant in a year. How hard is she!? If you think I had it tough then I urge you to read her blog.
Bekah is another heroine about to take the SCT journey. Now I have never met Bekah but she is the sweetest 23 year old I know. She is intelligent beyond her youth and has frankly been dealt some pretty pish hands in her life. She accepts everything in good grace and, if you read the comments left to my posts, you can see for yourself what an amazing support she has been to me throughout my transplant. I hope I can return the favour. I'm sure I felt my heart rip when I heard the confirmation of her relapse. Some light went out, anyway.
Here is darling Bekah and D. Keep them in your thoughts and prayers.

It feels like a knife to the guts whenever I hear news of a relapse. So this isn't "real" cancer then, huh?

3 comments:

Kelly Kane said...

I'm glad you're doing well being back at work - I'm always wondering how they're treating ya :)

And thanks for asking peeps to support Morgan and Beks! They said something like 2000 people read Morgans blog in a night! Thats a lot of support!!!!

I need to pick up the card for you tomorrow. I'm in my pjs and am going to lay in bed and watch tv since I'm feeling sicky.

I hope I can catch up with you and the Mrs soon!

XOXOXOXOXOXO!

B. said...

Dearest Wullie,

I gather my strength, knowing I am following some of the toughest, brightest spirits that have endured transplant (and their wonderful caretakers)

I hope as you begin approaching your days of 200 pluses, that you, V, and the girls are truly able to enjoy these happy times.

I'm honored by your words,
however, I feel that I have learned from those who have walked this path before me.

Sending you all my love
from the moon
to the stars
and back again --
and then across the pond ;)

B

laulausmamma said...

Wullie - your heartfelt encouragment and support for those that go before you is heartwarming. I know Bekah will work her hardest to have her transplant behind her so she can give you a big bear hug in person when we all get together in Boston in June (right Bekah?!). We'll have a lot to celebrate!!!!

Susan